About The Foundation

The original Foundation subgoal to support research has now been transferred to the International Thymic Malignancy Interest Group. The Foundation now concentrates on patient support, education, and outreach.

The Foundation for Thymic Cancer Research (FTCR) was founded in 2003 by Barbara Neibauer after she was diagnosed with a rare ectopic thymic carcinoma in her neck. Her surgeon warned her that very little was known about her cancer and what little information could be found was often confusing. Barbara passed away from her cancer in September 2005 but the Foundation continues to work toward her vision.

With the help of Alan and Roni Blaustein, FTCR was able to sponsor two ground breaking workshops that, for the first time, brought together medical professionals from all disciplines (pathology, oncology, radiology, and surgery), along with patient advocates, from Mexico, Europe and the United States. The 2007 workshop in New York and the 2008 workshop in Houston culminated in co-sponsorship, together with the National Institutes of Health (NIH), of the First International Conference on Thymic Malignancies in Bethesda in August of 2009. From these landmark conferences, the International Thymic Malignancy Interest Group was born.

These workshops and conferences also resulted in the first official NCCN Practice Guidelines for Thymic Malignancies, and numerous scientific papers.

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