Patient Registry

Joining the Foundation for Thymic Cancer Research Registry

Thank you for your interest in this contact registry. The purpose of this contact registry is to provide an opportunity for you to receive information about studies conducted on thymoma or thymic cancer. You may also learn about progress being made towards treatment advances by researchers.

By joining the Registry, you will be asked to provide information about you and how you can be contacted. The registry will use that information to contact individuals who might qualify for participation in a research study. We may also use your contact information in order to communicate treatment information and sources.

Because of their rarity, researchers often have difficulty finding enough patients to study these diseases in order to understand and cure them. By joining the registry, you are adding to the overall body of knowledge about thymic cancers.

To join the contact registry, click “Register Now” and give authorization and complete the contact registry form.

After you have read and agreed to the Authorization, the Registry form will appear on your screen. This form asks you for information such as your name, address, birth date, place of birth, email address, or items relevant to your disorders.

Once you have entered and submitted this information online, the data will be stored in a secure, computerized database. After reviewing the information that you submitted, a representative of The Foundation for Thymic Cancer Research may contact you for further information that may be helpful to researchers. No personal identifying information (such as your name, address, telephone number) will be given to anyone without your expressed approval.

Register Now!

If you are currently a member of the Contact Registry and would like to discontinue enrollment, click here.

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Have a story to share abut your experience with thymic cancer? Or do you have an update for your story that you have already posted? Submit your story or update now. Click here.

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